The ASD Nest Egg

strategies to support kids on the autism spectrum

Category: neurodiversity

Using Roles and Building Self-Awareness

School is social and for autistic kids, this can be tricky to navigate. Social situations– essentially any situations where space is shared with others– can be difficult because the expectations are not consistently explicit and clear. Throughout the day, students are expected to take on a number of different roles: if a teacher is speaking to the whole class, maybe the student will act as a listener, but in the lunchroom the student may be expected to be a more active participant.

 

Roles help us know what to expect and what is expected of us. Imagine if you walked into a new school and you didn’t know who the principal was, who the custodian was, or who the other teachers were!

 

Group work

Group work can be challenging because people don’t always verbalize the roles that they take on. You can support this in the classroom by making explicit all the jobs that need to be taken on: Who will organize the timeline? Who will find pictures? Who will do the research?

 

Help students build their self-awareness by modeling your own strengths and interests. Label what you see as their strengths, too, but remember to include students in the process of role selection. Encourage students to try roles that they may not be drawn to since this can always lead to a new interest or strength.

 

Jobs

Classroom jobs can be a great way to have students take on explicitly defined roles. These jobs can be used strategically (e.g. students who like to move around can get a job of “delivery person” and students who like numbers can be “calendar helper”), but they are also a great way of modeling how to use strengths to influence roles.

 

In older grades, jobs can take students outside of the classroom; maybe they intern for a coach, or go out into the community to learn while helping others. Recognizing that we all play various roles depending on the context is a useful lesson for everyone, but can be particularly powerful for autistic students, for whom “context” sometimes needs to be highlighted externally.

outline of a person in front of 3 doors

Choices

Whenever possible, allow students to incorporate their interests into activities. Have a student who loves dinosaurs? Let them write dinosaur math problems in math class, and allow them to write a story about a dinosaur (perhaps from a dinosaur’s perspective) in a creative writing ELA unit. Sharing interests are the foundation for friendships, and the more students are encouraged to recognize their own strengths and interests, the more likely they may be to recognize connections between themselves and others. Choices are an excellent way of providing for Multiple Means of Engagement, a Universal Design for Learning (UDL) guideline. The goal of UDL is to give “all individuals equal opportunities to learn,” and the engagement guidelines, in particularly, help provide students with a sense of belonging.

 

By middle and high school, students can use this insight to form clubs based on their interests and to inform the courses they choose. Eventually, this practice of self-reflection can help them transition into adulthood and a career that not only helps them apply their skills and strategies, but which they also find fulfilling.

 

Interested in learning more?

Read about ideas for classroom helpers & jobs

See examples of role cards here for elementary school and here for middle/high school, and here for a variety of grades

Together in Difference: Embracing Neurodiversity

by Allison Graham Brown

 

“It seems that for success in science or art a dash of autism is essential.” -Dr. Hans Aspergers

 

Neurodiversity is a buzz word right now, but what does it really mean?

 

Well, neurodiversity, at its core, means there are many kinds of human minds. This is a simple fact of human biology. The Neurodiversity Paradigm takes it a step further stating that neurological differences are as common as any other human variation and that they enrich society.

 

In his book, The Power of Neurodiversity, Dr. Thomas Armstrong breaks down this paradigm into eight principles of Neurodiversity. Dr. Armstrong states that human beings, and human brains, exist along continuums of competence and ability. This means we are connected to one another other, not separated into categories of normal or disabled. Moreover, depending on the category (social motivation, academic ability, artistic ability, professional accomplishment, etc.), we will fall at different points on the continuum. This is a powerful message to convey in your classroom to both highlight individuals and build community.

Here are two key principles of Neurodiversity to consider and apply in your practice:

 

location icon (circle with upside down teardrop around it)Location, Location, Location

What does this mean?

According to Thomas Armstrong, the fourth principle of Neurodiversity is that human competence is context-specific and is defined by the values of the culture to which you belong. This principle highlights that diagnostic categories are not solely scientifically-based, but reflect deep societal biases. For example, Dyslexia is based upon the social value that everyone should be able to read.  However, in rural farming villages in other countries, Dyslexia doesn’t appear to exist because the society relies on other skill sets.

 

What do these principles mean for us?

It is important for us to be aware of the cultural and societal biases that exist and impact the message we send to our students. In our current education climate, it has become increasingly difficult to value differences in neurology. In education, our society has placed such a high value on literacy, often eliminating arts programs, and applauds skills associated with the Common Core. However, in your classroom you can create a community who values the neurology and talents that each individual contributes.

 

What can I do in my classroom?

Highlight neurodivergent role models. Showing students that many famous historical figures, field leaders, and innovators are neurodivergent demonstrates the value that all types of thinkers bring to our society. This can help build students’ self-confidence and encourage them to work hard in order to further their talents. There are a myriad of content-specific neurodivergent role models that you can highlight throughout your curriculum including: Isaac Newton, Wolfgang Amadeus Mozart, Thomas Jefferson, and Pablo Picasso. So, as you create your curriculum, be sure to highlight some unique and influential thinkers who contributed to the field.

 

magnifying glass icon with arrow inside circle Finding Your Niche

What does this mean?

According to Thomas Armstrong, the seventh principle of Neurodiversity is that finding a community and environment that builds on your strengths and interests enhances your happiness. Research shows that a more complex network of neuronal connections develops in the brain when you are in an enriching environment. Therefore, seeking out people who validate your abilities and environments which rely on and celebrate your strengths support your success.

 

What do these principles mean for us?

We need to expand our definition of success and of strengths–not everyone has to be, can be, nor should be at the same level of achievement in every area. Success for one individual may be vastly different than success for another and that helps our society thrive because we need all kinds of contributions and professions. Not only do we need to recognize and capitalize on the strengths of our students, but we need to teach them to recognize, celebrate and make choices based on their strengths and interests as well.

 

What can I do in my classroom?

Provide options that capitalize on different strengths. As you develop your curriculum, provide choices for lessons, assignments and projects that work toward different strengths and skill sets. This will enable students to showcase their understanding of your content while also building on their strengths. To inform your development, consider giving learning style surveys to get to know your students’ needs and strengths better.

 

For more information about Neurodiversity read autism self-advocate Jim Sinclair’s Don’t Mourn For Us .

For more information about Neurodiversity and practical strategies to implement in the classroom read Thomas Armstrong’s Neurodiversity in the Classroom

The Most Important Three-Word Phrase

The following is the text from a speech delivered by NYU Professor Kristie Patten Koenig at the Doctoral Convocation Speech for NYU Steinhardt, May 11, 2017

First, on behalf of the faculty I would like to congratulate each of you for your accomplishments that we mark today. We celebrate your achievements, we welcome and thank your families and friends for their support, and recognize the perseverance and passion that brought you to this day. This is a moment, one of many moments over the course of your careers as researchers, educators, performers and professionals that you can look back and claim as part of your journey.

I am sure that each faculty member sitting behind me can remember this very same moment in their career and if asked could share other defining moments in their lives as a scholar as they examined their content area more deeply, engaged in a research project that yielded surprising findings, produced a musical piece or a work of art that took their own breath away, or questioned existing paradigms that foster oppression, sometimes revealing that their own work may have been supporting these paradigms.

If you will indulge me, I want to share one of my defining moments that falls into the last category. The message from this moment can be summed up in a three-word phrase that has served me well since my own graduation with a PhD in Educational Psychology. My hope is that it will be of some benefit to you as you enter the next chapter in your academic and professional lives. It is a three-word phrase that is rarely said these days. It is a three-word phrase that turned me in a different direction as an occupational therapist, as an educator, as a researcher and quite frankly as a human being. It is a three-word phrase that once you say it, if you reflect and then act, your work and focus must change. It has too. It is a three-word phrase that one rarely hears anymore, especially in the echo chamber of our current discourse. It is quite simply, I was wrong, and I hope you get a chance to be wrong too.

[ face palm emoji ]

Now I know this message may not resonate right now, after successful defense of your dissertation, or successful clinical placements, so let me explain.

As a practitioner I worked on the myriad of deficits that individuals with autism display. As a researcher, I began my career studying deficits and examined the efficacy of interventions on outcomes associated with these deficits. I was on my way as a confident newly minted PhD!

Early on I received a small training grant to develop materials to train behavioral health providers. By chance and inspiration we decided to interview adults with autism long before people were talking to adults with autism. We had no idea what information we would be able to gather as we traveled throughout the state, recruiting adults for interviews to help guide our materials that we were developing for children. My colleagues and I had the incredible fortune to interview several individuals who typed independently to communicate but were non-speaking. Each of these individuals demonstrated atypical behaviors associated with the core features of autism, flapping, aggression, self-injurious behavior, lack of eye contact, and often covered their ears when we arrived and rocked back and forth prior to the interview. I knew these weaknesses, I spent most of my professional life either remediating these weaknesses or studying interventions to remediate these weaknesses. I knew these behaviors. These were familiar deficits.

As each interviewee sat down at their keyboard and began to painstakingly type out their answers, their deficits were present but quickly overshadowed by their messages. I listened as the first college graduate in the state that was non-speaking typed out “I would like to write a book about disability and my experience using Foucault’s frame of normal.” I listened as a young woman typed that she wanted to be a “regular girl,” and before I could ask my follow up as to what she meant, watched as she encircled her left ring finger signifying a wedding or at least an engagement. I listened and watched as a young man, one who has deficits in empathy and perspective taking according to us experts, saw his mother grieving after her father, his grandfather had died, type out, “mom don’t bear you sadness on your shoulder, bear it in your heart where remembering can turn the pain into love.” A profoundly empathetic statement. I realized our simple communication systems we used were wrong. I realized that our IQ testing would not only get the cognitive capacity of these individuals wrong, but then our educational systems would program to that arbitrary number. I realized that by every professional focusing on their deficits, these individuals could not identify what their own strengths were. The system, and I as a part of that system had framed a language of deficit, a language of weaknesses, that was reinforced by society over and over again.

[ icon of strong person ]By listening, I realized I was wrong. We do not build our lives on remediated weakness, why are we expecting those we serve to build their lives on remediated weaknesses? We define and study lack of empathy in autistic individuals without even examining our own lack of empathy towards the autistic way of being. We focus primarily on a deficit-based model while giving lip service to a person’s strengths. How was I perpetuating this? Why was I studying all that was wrong versus what was right? How is society complicit in perpetuating a deficit narrative, and what is my role in not only challenging that paradigm, but overturning it. This is my frame now, it is essential to who I am as a human being, what I care about in research, and who I listen to. All because I was wrong.[ maya angelou quote: do the best you can until you know better. when you know better, do better. ]

So listen to those you have the privilege to serve and hear their voice. Challenge systems. Question from within. Partner with versus simply studying people. Disseminate your work to communities where it matters most. Listen and hear and listen some more. Change your mind. Go in a different direction. To paraphrase Maya Angelou when you know different, please, please do different! I look forward to each of you having those moments, moments that matter, moments that define you. Moments that you will look back and say because I was wrong, it made all the difference. Thank you and congratulations!!

 

Kristie Patten Koenig, PhD, OT/L, FAOTA, is Associate Professor at New York University, and Chair of the Department of Occupational Therapy. She is also Principal Investigator of NYU Steinhardt’s ASD Nest Support Project.

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